....still at KGH

Well we are on day 11 of a 14 day dose of antibiotics for the blood infection Aly had, and so far all of her blood work has come back clean.  They had one final sample taken last night, so hopefully we get those results tomorrow.  Although I am curious about when we get to go home, I have yet to ask the question....as I mentioned before the idea of being away from here is a little frightening.  The only reason I say that now is, with this next protocol of treatment Aly is getting, it will really impact her white blood cells and they will begin to decrease therefore making her neutropenic ( no immune system).  So .... every time she has a fever over 38 degrees .....of to Emerg we go :) It's just such drama for her to go through  ( ...and us).
   Aly has been running a slight fever each night for the past week, and I think I figured out why today.  She has finally cut her 2 year molars. Although every parent out there would agree that teething causes redness in cheeks and fevers - most Doctors would disagree ( as I have found out ).  Oh well -- I think that is what has caused the fevers - so that is what I will stick with.

We have finally gotten Al outside for some fresh air.  Yesterday we headed out just before lunch ... we walked through the park and headed for the market where we picked up some fresh raspberries, blueberries and peaches - - yummy!  We headed down to the waterfront to see the big boats, then spent some time feeding the ducks before we had lunch and headed back to the hospital.  Aly hasn't walked too much over the past month, so her legs are pretty shaky and she doesn't move as quickly as she once did.  This morning her legs were sore, but she still managed to do a couple rounds of the pediatric floor before asking to go outside.  So we got dressed, grabbed the stroller and headed back downtown.  Daddy met us in the park and we hit the Antique market, swung by Pan Chancho for some muffins, coffee and special sugar cookies for Aly ..... then back to the waterfront to relax for a bit.  We then had brunch and headed back to the hospital.  When we passed through the park we saw all the little kids playing in the splash pad - - it was sad because Aly just looked at all the kids playing and laughing.  She asked to get out of her stroller, but when we got her out, she couldn't really walk - - it seems to be her right leg that is bothering her the most,  When she takes a step it points to the left a bit and it almost looks like it is asleep or heavy.  Daddy carried her from the park all the way back to KGH - - it was pretty muggy out so Brian sweat the whole way - Aly thought it was pretty funny.

Uncle Stew and Auntie Reb stopped by today with a one of a kind Tshirt for Aly ..... although she was very grumpy and not up for visitors when they were here, she is loving her new Tshirt...... she has actually fallen asleep with it on tonight - - she refused to take it off. It is officially her first concert T-shirt ..... the first of many I hope.