Good Bye Wall E

Well we initially were admitted into the room the Aly was diagnosed in - - and although we have since spent the night in that room, this time I wanted no part of it.  I am not normally one to ask to have my room changed, but knowing we could be in the hospital for a little while, I knew I couldn't do it in this room.  I mentioned it to the nurses and while I went home to gather some belongings they arranged to have us placed in another room - - I was very grateful.  Well we settled in and the surgeon came into to discuss the removal of her port - it was scheduled to happen on Wednesday March 21st as early as they could.  I understood that there were others who had to have surgery that day but I wanted Aly's done early.  She had to fast before the surgery and having just finished steroids, she would still have a healthy appetite in the morning and I would have to distract her from having anything to eat.

Luckily they came and got us for surgery at about 9:15am.  As we were prepping for surgery I told the doctor and nurses that Aly is quite feisty, specially when waking from sedation ..... they just smiled at me like I was over-reacting or something.  The procedure didn't take long and by the time I grabbed a coffee and returned to the waiting room, not much time passed before the surgeon and her resident came looking for me with a funny expression on their faces.  They said - umm she's awake and she is asking for you.  As soon as I entered the recovery area I could hear her screaming ..... ahhh that's my girl I said.  She was particularly feisty this day and I could do very little to console her as she didn't want me to look at her and didn't want me to hold her - - but after some time I finally got her to sleep then we were returned to her room.  Luckily they put an IV in her arm while she was sedated so she now how to have all her antibiotics given to her in her arm.  When Aly woke up again she was happy to see that her Granny was there ..... and she was back to her usual self.  She actually likes to stay over in the hospital.  It wasn't until that night that she asked why there was a patch over Wall E ( her port)  I told her that Wall E was no longer there ....... and she started to cry.  I weird reaction I guess, but she really identified with her Wall - E and spoke about it like it was a person ( or a fictional robot garbage compactor).  I later explained to her that Wall E has gone onto another mission to help another little girl.  The next day however she still referred to her IV pole as Wall E, so I guess he will remain with us for a little bit longer.
 We were discharged from the hospital after 4 days and sent home with the yuckiest tasting oral antibiotics and were given home care to change her dressings daily from the surgery.

  So with her port gone - - each visit to the clinic will mean that she will have to be poked with a needle like adults are ..... this will not go over well.  I will be open minded and see if she handles it well, but I would prefer that he port be put back in considering she has 2 years left of treatment.  I shall keep you posted.